FORCE Blog

This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.

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Archives

Posts Tagged ‘genetic testing’

September 28, 2018

Addressing Previvors’ Needs for Affordable Access to Care

by Lisa Schlager (Note: Adapted from an article in the September 2018 issue of The Oncology Nurse) In 2010, FORCE spearheaded passage of a Congressional resolution declaring the first-ever National Hereditary Breast and Ovarian Cancer Week and National Previvor Day. This year, Previvor Day is October 3rd. Over the past 8 years, the number of people … + read more

September 21, 2018

Headline Hype: Media Report on BRCA1 Variant Research Plays on Fears

by Piri Welcsh, PhD Most people who have genetic testing for BRCA1, BRCA2 or other genes associated with cancer risk receive either a positive or a negative test result. A positive genetic test result indicates that a change called a mutation was found in a gene which is associated with increased cancer risk. A negative genetic test … + read more

September 12, 2018

Starting a Conversation about My Family Health History

by Shannon Pulaski Ten days into my journey into parenthood, my own mother was diagnosed with ovarian cancer.  It shook my family’s entire world.  And when the earthquake settled, we realized we were only just beginning to understand our new reality.  We were fortunate that her doctor knew to test her for the BRCA gene.  … + read more

September 11, 2018

We All Love a Good Book or Movie

Some books and movies make us think.  Some make us laugh or cry. Some are educational and others are just plain fun.  And, then some do all of the above.  Below is a list of personal memoirs, self-help and reference books created to share information and stories of those who have experienced hereditary cancer. You … + read more

July 11, 2018

Where’s FORCE? May and June

by Lisa Schlager “Where’s FORCE” features an overview of the many places our staff and volunteers have been and the many ways we have spoken out for the community in the past couple of months. May “Financial Toxicity” is a term used to describe the impact of health care costs on patients and their families. … + read more

June 14, 2018

XRAYS Blog: Me and My MSH6 Mutation: Ever Searching for Answers

by Aya It all started with Mother’s histopathology report on her partially resected small bowel. She had small bowel cancer. With my middle name being “I-want-to-know-more,” I asked for a pathology report after a post-op consultation with her surgeon where future management was discussed.  When I read the report at home, I noticed an aspect … + read more

May 30, 2018

Where’s FORCE? March and April

by Lisa Schlager “Where’s FORCE” highlights the ongoing efforts of FORCE staff and volunteers on behalf of the community. March As a member of the Bayer Oncology Patient Advocacy Advisory Council (PAAC), FORCE Vice President of Public Policy Lisa Schlager joined representatives from other advocacy groups and Bayer to review project proposals submitted by nonprofit … + read more

April 12, 2018

PARP Inhibitors and Hereditary Cancer: What’s New?

by Sue Friedman PARP inhibitors are drugs designed specifically to treat cancers in people with certain inherited mutations, including BRCA1 and BRCA2, among others. These drugs block an enzyme – known as PARP – used by cells to repair damage to their DNA. Although these agents seem to be most effective in people with mutations—not just … + read more

October 23, 2017

No Longer Alone: 1000 People Benefit from Personalized Cancer Risk Support

by Sandy Cohen Unfortunately, my story is not that uncommon. I’m a motherless daughter. I lost my mom to breast cancer when I was 26 years old. And she lost her mom to the disease before she graduated high school. This all occurred before the BRCA1 mutation was even discovered. Today, thanks to FORCE’s programs, … + read more

May 11, 2017

Fueling Patient-Focused Health Care

by Melanie Nix I know a woman who has hereditary breast and ovarian cancer (HBOC) syndrome. She is a triple negative breast cancer survivor. She has a BRCA1 gene mutation and is the fifth generation in her family to have breast cancer. She lost her youngest aunt to ovarian cancer after multiple battles with both … + read more

March 1, 2017

Making Postmastectomy Decisions: The Right Input is Critical

Note: This is part 3 of a 3-part series related to our recent XRAYS review on Roni Caryn Rabin’s New York Times piece, “‘Going Flat’ After Breast Cancer.” In part 1 of the series, FORCE volunteer, Robin Karlin discusses her decisions after mastectomy, and her feelings post-reconstruction. In part 2, Sue Friedman talks about the affect of … + read more

February 15, 2017

Guest Blog: Join FORCEs at our 2017 HBOC Conference!

by guest blogger, Jane E. Herman When I boarded the flight for my first trip to Orlando in June 2011, my goal was not to hug Mickey Mouse or visit Cinderella’s Castle. Rather, my destination was the sixth annual Joining FORCEs Conference. Not knowing anyone who would be in attendance, I was – not unexpectedly … + read more

January 12, 2017

Update on Hormone Therapy for Previvors

by Alexandria Groves and Lisa Rezende, PhD National guidelines recommend that women with mutations in BRCA have risk-reducing removal of their ovaries and tubes, (also known as salpingo-oophorectomy or RRSO) either between the ages of 35-40 or after they are done having children. RRSO greatly reduces the risk of ovarian, fallopian tube, and peritoneal cancer, … + read more

January 5, 2017

FORCE Collaborates on Genetics Toolkit for Health Care Providers to Help Improve Patient Care

by Alexandria Groves In October The Society of Gynecologic Oncology (SGO) announced the release of the SGO Genetics Toolkit to provide critical and important information to health professionals, patients and their families, and anyone who wants a deeper understanding of gynecologic cancers and genetics. The Toolkit is the result of a collaboration between experts from … + read more

December 8, 2016

Tips for Sharing the Gift of Knowledge with Relatives

by Sue Friedman Members of our community who have already had genetic testing often ask for advice on how to speak about it to their relatives. Some common barriers to testing that we hear voiced by people are: concern over the cost of testing access to genetics experts family communication challenges With the holidays coming, … + read more

Connect with others.

Call our Helpline

Our helpline offers peer support for people concerned about hereditary cancer. All calls are confidential. Call any time.

Join a Local Group

FORCE has outreach groups throughout the United States and in Essex, United Kingdom that meet periodically to offer peer support, and share resources.

FORCE:Facing Our Risk of Cancer Empowered