This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.
by Marla Ruhana In the XRAYS review, Juliet’s story: No reconstruction is a post-mastectomy option, Juliet’s experience resonated with me. My mastectomy journey began in August of 2003, when my sister called and said, “Well, I’m one of the seven percent of women who get breast cancer under the age of 40.” She said that … + read more
by Sue Friedman Many people mistakenly believe that genetic testing for inherited mutations in BRCA1, BRCA2, Lynch Syndrome, and other genes is only appropriate for people with many cases of cancer in their family. National guidelines—based on the latest research—state otherwise. There are situations where a single case of cancer in a family is enough … + read more
by Shannon Pulaski Ten days into my journey into parenthood, my own mother was diagnosed with ovarian cancer. It shook my family’s entire world. And when the earthquake settled, we realized we were only just beginning to understand our new reality. We were fortunate that her doctor knew to test her for the BRCA gene. … + read more
by Sue Friedman Half of all people with an inherited BRCA, ATM, CHEK2, PALB2 or other mutation associated with HBOC are men. Nevertheless, the majority of awareness, research, and resources have focused on genetic testing in women. A recent article in JAMA highlights this disparity in BRCA testing between men and women. Emerging information on … + read more
by Aya It all started with Mother’s histopathology report on her partially resected small bowel. She had small bowel cancer. With my middle name being “I-want-to-know-more,” I asked for a pathology report after a post-op consultation with her surgeon where future management was discussed. When I read the report at home, I noticed an aspect … + read more
by Karen Kramer, FORCE Senior VP of Marketing “It’s a beautiful day to save lives.” That phrase was often said by Patrick Dempsey’s character—Dr. Derek Shepherd (aka “McDreamy”)—on Grey’s Anatomy. It is a statement that resonates with me and has been a guiding principle for FORCE since the organization’s founding in 1999 by Sue Friedman, … + read more
by Kristín Hannesdóttir and Anna Margrét Bjarnadóttir On March 10th, BRCA Iceland hosted its first international conference. Sue Friedman, Executive Director, Founder of FORCE, was the keynote speaker. In June 2017, we attended the FORCE conference in Orlando. We barely knew each other at the time, but we are both BRCA2 carriers, have lost several … + read more
by Laura Esserman, MD Breast cancer screening today: A groundbreaking breast cancer screening study is underway in California and you may be eligible to be a part of it. It’s called the Wisdom Study. The aim is to determine if we can make screening better by personalizing each woman’s mammogram schedule, compared to the current … + read more
by Alexandria Groves In October The Society of Gynecologic Oncology (SGO) announced the release of the SGO Genetics Toolkit to provide critical and important information to health professionals, patients and their families, and anyone who wants a deeper understanding of gynecologic cancers and genetics. The Toolkit is the result of a collaboration between experts from … + read more
by Sue Friedman Members of our community who have already had genetic testing often ask for advice on how to speak about it to their relatives. Some common barriers to testing that we hear voiced by people are: concern over the cost of testing access to genetics experts family communication challenges With the holidays coming, … + read more
by Lisa Schlager The results of the 2016 election and the pending change in administration have triggered renewed focus on the future of healthcare. FORCE released an official statement on the election’s impact on the HBOC community and I hope to address additional issues here. The hereditary cancer community has good reason to be concerned. … + read more
by Sue Friedman FORCE’s KNOW MORE campaign helps women diagnosed with ovarian, fallopian tube, or primary peritoneal cancers make informed decisions about genetic counseling and testing for inherited gene mutations. We launched a survey, which was completed by over 1,600 women with ovarian cancer. This blog continues our series on the survey results. We received over … + read more
Our helpline offers peer support for people concerned about hereditary cancer. All calls are confidential. Call any time.
FORCE has outreach groups throughout the United States and in Essex, United Kingdom that meet periodically to offer peer support, and share resources.
