Get Updates

FORCE Blog

This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.

Get Involved > HBOC Community > FORCE Blog

| More

FORCE Blog

Subscribe to Blog via Email

Enter your email address to subscribe to this blog and receive notifications of new posts by email.

Join 1,082 other subscribers

Archives

An Advocacy Win for Cancer Survivors Facing HBOC

June 2, 2015

  We frequently mobilize our community to challenge health policy barriers to medical care. It’s always gratifying when we are able to report wins, when FORCE organized and amplified your voices to affect positive change. Clarification of guidelines paves the way for eligible cancer survivors to receive BRCA counseling and testing at no cost Guidelines … + read more

Newly proposed United States Preventive Services Task Force (USPSTF) breast cancer screening guidelines fail to address the needs of many women

May 9, 2015

The United States Preventive Services Task Force (USPSTF) has published its Draft Breast Cancer Screening Guidelines. Once finalized, these recommendations will replace current guidelines that were published in 2009. The proposed recommendations are specifically to guide decision-making about breast cancer screening for women of average breast cancer risk. The guidelines are particularly important for patients … + read more

Another Reason for People to Know Their BRCA Status

April 13, 2015

By sharing her BRCA status and news of her prophylactic surgeries with the world, Angelina Jolie Pitt has raised awareness about BRCA testing and hereditary cancer to new heights. Her op-eds have created the “the Angelina Effect,” a term describing how her celebrity has increased demand for these services. Still, many people who meet national … + read more

Angelina Jolie and Patient-Centered Outcomes Research

March 31, 2015

Kudos to Angelina Jolie Pitt for sharing her BRCA status and news of her prophylactic surgeries with the world, soon after her risk-reducing mastectomy two years ago and again last week when she wrote about her bilateral salpingo-oophorectomy. Her two op-eds brought an unprecedented level of awareness about hereditary cancer, making words like “mutation” and … + read more

Regulating the Next Generation of Genetic Tests

March 5, 2015

Gene sequencing – also known as genetic testing – is the process scientists use to analyze DNA in search of mutations and variations in an effort to discover more about the connection between genes and traits, health and disease. Since the discovery of BRCA 1 in 1994, the sequencing of genes to find mutations has … + read more

HBOC, FORCE, and the President’s Precision Medicine Initiative

February 20, 2015

Recently, President Obama outlined his Precision Medicine Initiative, which generated a lot of buzz. If successful, the plan will move medical research toward personalized treatment options that are based on people’s genetics, environment, lifestyle, and individual preferences. I’m excited that the White House is recognizing and committing funding towards an approach to health care research … + read more

Spreading HBOC Advocacy to Japan

February 3, 2015

Last month I had the honor of giving two talks at a conference organized by the Japanese HBOC Consortium in Tokyo: one for patients and the other for health care providers. Most people in Japan have little input into their health care decisions and do not question their doctors’ recommendations. The conference organizers hoped that … + read more

A Game-Changing Holiday Gift for People with BRCA Mutations

December 19, 2014

Today is a landmark for the HBOC community! After almost a decade of research, AstraZeneca has received FDA approval for Lynparza (also known as olaparib) for women with BRCA mutations who have ovarian, fallopian tube or primary peritoneal cancer, and who responded favorably to their initial treatment. This is the first FDA-approved PARP inhibitor, and … + read more

Education, Medical Decisions, and Regret

December 15, 2014

Note: This article was originally posted in 2014 and updated on 05/12/16. An AARP article that contained an interview with rock stars Sheryl Crow and Melissa Etheridge brought awareness to the individual and personal nature of genetic testing, hereditary breast and ovarian cancer (HBOC), and the medical challenges that accompany inherited breast cancer. The article also led to … + read more

FDA Approval of Promising Targeted Therapy Likely Stalled Until More Research Studies are Completed

June 29, 2014

Wednesday, June 25, 2014 was a pivotal day for our community. It began with promise and ended with disappointment. For the first time ever, a treatment targeted for BRCA-associated cancers was considered for approval by the FDA. Yesterday the FDA’s Oncologic Drug Advisory Committee (ODAC) held a hearing to consider FDA approval of the drug … + read more

Challenges to HBOC Research Enrollment: Competing Cancer Treatment Studies

March 24, 2014

Research is the key to better medical options. In prior blogs, I outlined some of the barriers to completing hereditary cancer research. This is the next blog in our series about addressing the barriers to hereditary cancer research. Hereditary cancers make up a small subset of a larger disease state. About 7% of all breast … + read more

Health Care Providers Can Help Accelerate Hereditary Cancer Research

March 3, 2014

Why HBOC research is important Hereditary cancers constitute a small subset of a larger disease state. About 7% of breast cancers and 18% of ovarian cancers are due to a BRCA mutation. The HBOC community shoulders a disproportionate cancer burden, facing lifetime cancer risks that are higher than any other known population. Our cancers tend … + read more

FORCE 15: Reasons to Join FORCEs and Attend Our 8th Annual Conference

February 21, 2014

Need a reason to attend this year’s Joining FORCEs Conference? Here are 15 good ones: It’s the largest annual gathering by and for the hereditary cancer community.  Be a part of this landmark event. We make the latest science understandable and accessible. Hear experts clearly explain the science of hereditary cancer and make the latest … + read more

Patient-Centered Outcomes Research Institute (PCORI): Research Done Differently

February 1, 2014

What is PCORI? The Patient-Centered Outcomes Research Institute (PCORI) is a new government-supported agency that approaches medical research with a focus on the patient to improve health outcomes. Aiming to answer medical questions that are most important to patients and collecting data from “real world settings,” this differs from traditional research, which typically occurs at … + read more

Happy New Year, Happy Birthday, FORCE!

January 3, 2014

Just after midnight on New Year’s Day 1999, I formalized a plan that I had consideredfor months. That day FORCE was born. I could write volumes on the many ways FORCE has impacted every aspect of my life, but this blog is about FORCE’s achievements and how the organization has helped people and families affected … + read more

Connect with others.

Call our Helpline

Our helpline offers peer support for people concerned about hereditary cancer. All calls are confidential. Call any time.

Join a Local Group

FORCE has outreach groups throughout the United States and in Essex, United Kingdom that meet periodically to offer peer support, and share resources.

FORCE:Facing Our Risk of Cancer Empowered