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FORCE Blog

This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.

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OlympiA: A Landmark Breast Cancer PARP Inhibitor Clinical Trial

March 3, 2016

by Sue Friedman Great progress has been made since the identification of the BRCA1 and BRCA2 genes and their link to causing breast, ovarian, pancreatic and other cancers. Over the last two decades, researchers have studied how BRCA mutations cause cancer in an effort to develop new treatments. In December 2014, Lynparza, (olaparib), a type … + read more

NCCN Summit Explores Patient Perspectives of Value in Cancer Care

March 2, 2016

by Lisa Schlager Our January 8, 2016 blog introduced the emerging topic of value in cancer care and the importance of public participation in this discussion. On December 1, 2015, the National Comprehensive Cancer Network (NCCN) hosted a Patient Advocacy Summit titled Value in Cancer Care – Patient Perspectives in Washington, DC.  I was fortunate … + read more

4 Reasons Why Women Affected by Breast Cancer Should Question Health Information Shared from the Media

February 19, 2016

Where do women affected by breast cancer typically go to find credible information?   Like most people, women affected by breast cancer turn to the mainstream media—the news or the Internet—to read up on what’s going on in the world. Whether looking for an update on the presidential debate, checking to see when the big … + read more

What Every Woman with Ovarian Cancer Should Know: FORCE’S KNOW MORE Campaign and Survey

February 18, 2016

Increased awareness around BRCA genetic testing has helped people better understand their risk for cancer and options for lowering their risk. Less attention has focused on the importance of genetic testing for people who have already been diagnosed with cancer. This is particularly true for ovarian cancer survivors, because knowing your mutation status can change … + read more

Mammogram Update: Latest Screening Guidelines Finalized But Not Implemented

January 29, 2016

by Lisa Schlager Few health issues have stirred as much debate as the guidelines surrounding screening mammograms for average-risk women. Recent changes in national guidelines threatened access to mammograms for women age 40-49. FORCE worked together with other groups to pass laws that assure continued access to mammograms for women in this age group. At … + read more

5 Quick Questions to Ask Yourself to Help You Evaluate Health Information Shared by the News or Media

January 26, 2016

Have you ever seen a headline or read a story in the news or media with health information that made you wonder whether or not it was reliable? If you said yes, you are not alone. Today, it can be hard to know what to believe. Headlines like, “How a Breast Cancer Gene May Affect … + read more

Value in Cancer Care: Including Consumers in the Dialogue

January 8, 2016

by Lisa Schlager, Vice President of Policy and Community Affairs Value and access to appropriate health care is of vital importance to patients and their families, particularly as cancer diagnoses continue to rise—up more than 20 percent in the past decade—and health care costs steadily increase. In this environment, more attention is being paid to … + read more

Breast Cancer is Tough Enough. Finding Credible Information About it Should Be Easy.

December 18, 2015

Knowing that you are at high risk for breast cancer, or being diagnosed with breast cancer, is never easy. Finding out that someone you know is at high risk for breast cancer or has been diagnosed with breast cancer is just as hard. Having to then try to comprehend the medical jargon that you read … + read more

Guest Blog: An HBOC Week Message from Representative Wasserman Schultz

October 1, 2015

By Representative Debbie Wasserman Schultz I’m honored to have an opportunity to work with FORCE to promote awareness about Hereditary Breast and Ovarian Cancer. FORCE plays a crucial role in the cancer awareness and advocacy community, particularly for those of us who have been personally affected by genetic cancers. We share the fundamental belief that … + read more

Thanks Dave Bushman, for Sharing Your Story and Supporting FORCE’s Work

September 28, 2015

  Why I fundraise: When FORCE announced its FOR OUR CHILDREN fundraising effort, I immediately signed up. Although I was extremely reluctant to ask friends and relatives to donate, I knew that many of them would respond because they know how much FORCE means to me. My wife Jessie is fundraising, too – it’s a … + read more

Beyond Awareness: Working to Improve Outcomes for People Facing Hereditary Cancer

September 27, 2015

This week we mark National Hereditary Breast and Ovarian Cancer (HBOC) Week, and on Wednesday, National Previvor Day. This awareness campaign acknowledges the over one million people and families in the United States affected by hereditary cancer, due to a BRCA, PALB2, PTEN, ATM or other mutation linked to these cancers or a strong family history … + read more

Proposed Regulatory Changes Will Undermine Patient Protections Under GINA

September 5, 2015

Employees will be faced with a difficult choice—either disclose personal health information or maintain their privacy and pay more for health coverage. by Lisa Schlager Personal privacy and workplace protections are in jeopardy with recent proposals by the Equal Employment Opportunity Commission (EEOC). In April, the Commission proposed revising and reinterpreting the Americans with Disabilities Act (ADA) … + read more

Guest Blog: We All Deserve the Chance to Make Decisions About Our Futures

September 3, 2015

By Teri Woodhull Like most families in the FORCE community, cancer followed my family for generations. Breast cancer touched my mother, her mother, her mother’s mother, and my mother’s first cousin. And me. We knew it had to be more than a coincidence. My mother died at 46 of breast cancer. Her oncologist and other … + read more

XRAYS Program Looks Behind the Headlines to Make Sense of Cancer Research

August 24, 2015

FORCE is proud to launch our new program, eXamining the Relevance of Articles for Young Survivors (XRAYS). Funded by the Centers for Disease Control (CDC), the XRAYS program was developed to meet a growing need as more and more medical research articles on breast cancer are making the headlines. With the rise of social media, more consumers are turning … + read more

Guest Blog: Attending ASCO as a Research Advocate

August 9, 2015

By Robin Karlin Thirty thousand health professionals, fabulous views of Lake Michigan and downtown Chicago, miles of escalators, fountains and crowded atriums, long lines at every Starbucks, session after session of the latest research and educational panels, and a fun evening at Shedd Aquarium. These were all part of my 2015 American Society of Clinical Oncology … + read more

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