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FORCE Blog

This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.

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Experience with Oncology Clinical Trial Participation and Impact on Future Trial Design and Conduct

May 10, 2016

Note: Last year, TESARO, a pharmaceutical company developing a new PARP inhibitor for treatment of ovarian cancer and metastatic breast cancer, asked FORCE to help recruit previous clinical trial participants to join focus groups across the U.S. TESARO wanted to understand the patient experience to build clinical trials that are more responsive to patient needs. We … + read more

5 Stories We Love of Strong Women & Mothers: Happy Mother’s Day

May 7, 2016

Mother’s Day 2016 kicks off National Women’s Health Week, which goes from May 8th through May 14th. This is an excellent time to celebrate all of the women who have made a difference in our lives. Although beautiful, Mother’s Day can be an emotional (and sometimes messy) day. Many of us have mothers, grandmothers and … + read more

Receive Personalized Resources and Support Quickly and Easily Through FORCE’s New Peer Navigation Program

April 25, 2016

by Wendy Demming, FORCE Peer Navigator Volunteer I wanted to be a Peer Navigator because it is important for me to help others who are going through an overwhelming diagnosis. I remember being desperate for credible information, and wanting to talk to others who had been in a similar situation. I was so grateful when … + read more

Factors That Influence Decision-making for Genetic Testing in Women with Ovarian Cancer: Early Results from Our KNOW MORE Survey

April 18, 2016

KNOW MORE is a new campaign designed by FORCE to help women diagnosed with ovarian, fallopian tube, or primary peritoneal cancers make informed decisions about genetic counseling and testing for inherited gene mutations. We kicked off the campaign by launching a brief survey to better understand how women with ovarian and related cancers make decisions around … + read more

3 Things You Did Not Know About the XRAYS Scoring System

April 14, 2016

News stories are often misleading, which is why FORCE launched the CDC-Funded XRAYS (eXamining the Relevance of Articles for Young Survivors) program in the first place– to help young breast cancer survivors and those at high risk for breast cancer better understand health news stories. While many viewers opt in to see the weekly XRAYS … + read more

Today is the 4th Annual Ovarian Cancer Day of Silence- Help Us Make an Impact!

April 7, 2016

We are participating in the Ovarian Cancer Day of Silence today and we hope that you will too. The world we live in is often over-stimulated. To break through the noise, a simple act of silence can go a long way in creating and spreading awareness. Join us in the mission to give women diagnosed with ovarian cancer a … + read more

Update on Pancreatic Cancer Genetics Research

March 30, 2016

By Talia Golan, MD and Sue Friedman, DVM BRCA and pancreatic cancer The link between breast and ovarian cancer and BRCA mutations has been known since the 1990s. However, the awareness that these mutations also increase pancreatic cancer risk is more recent. If all patients with pancreatic cancer were tested for a BRCA1 or BRCA2 … + read more

Ovarian Cancer Survivors with a Negative Genetic Test Result in the Past May Benefit from Additional Genetic Counseling/Testing

March 17, 2016

KNOW MORE is a new campaign designed by FORCE to inform every woman diagnosed with ovarian, fallopian tube, and primary peritoneal cancer about national guidelines on genetic counseling and testing for inherited gene mutations. We kicked off the campaign by launching a brief survey to better understand how women with ovarian cancer make decisions around … + read more

OlympiA: A Landmark Breast Cancer PARP Inhibitor Clinical Trial

March 3, 2016

by Sue Friedman Great progress has been made since the identification of the BRCA1 and BRCA2 genes and their link to causing breast, ovarian, pancreatic and other cancers. Over the last two decades, researchers have studied how BRCA mutations cause cancer in an effort to develop new treatments. In December 2014, Lynparza, (olaparib), a type … + read more

NCCN Summit Explores Patient Perspectives of Value in Cancer Care

March 2, 2016

by Lisa Schlager Our January 8, 2016 blog introduced the emerging topic of value in cancer care and the importance of public participation in this discussion. On December 1, 2015, the National Comprehensive Cancer Network (NCCN) hosted a Patient Advocacy Summit titled Value in Cancer Care – Patient Perspectives in Washington, DC.  I was fortunate … + read more

4 Reasons Why Women Affected by Breast Cancer Should Question Health Information Shared from the Media

February 19, 2016

Where do women affected by breast cancer typically go to find credible information?   Like most people, women affected by breast cancer turn to the mainstream media—the news or the Internet—to read up on what’s going on in the world. Whether looking for an update on the presidential debate, checking to see when the big … + read more

What Every Woman with Ovarian Cancer Should Know: FORCE’S KNOW MORE Campaign and Survey

February 18, 2016

Increased awareness around BRCA genetic testing has helped people better understand their risk for cancer and options for lowering their risk. Less attention has focused on the importance of genetic testing for people who have already been diagnosed with cancer. This is particularly true for ovarian cancer survivors, because knowing your mutation status can change … + read more

Mammogram Update: Latest Screening Guidelines Finalized But Not Implemented

January 29, 2016

by Lisa Schlager Few health issues have stirred as much debate as the guidelines surrounding screening mammograms for average-risk women. Recent changes in national guidelines threatened access to mammograms for women age 40-49. FORCE worked together with other groups to pass laws that assure continued access to mammograms for women in this age group. At … + read more

5 Quick Questions to Ask Yourself to Help You Evaluate Health Information Shared by the News or Media

January 26, 2016

Have you ever seen a headline or read a story in the news or media with health information that made you wonder whether or not it was reliable? If you said yes, you are not alone. Today, it can be hard to know what to believe. Headlines like, “How a Breast Cancer Gene May Affect … + read more

Value in Cancer Care: Including Consumers in the Dialogue

January 8, 2016

by Lisa Schlager, Vice President of Policy and Community Affairs Value and access to appropriate health care is of vital importance to patients and their families, particularly as cancer diagnoses continue to rise—up more than 20 percent in the past decade—and health care costs steadily increase. In this environment, more attention is being paid to … + read more

Connect with others.

Call our Helpline

Our helpline offers peer support for people concerned about hereditary cancer. All calls are confidential. Call any time.

Join a Local Group

FORCE has outreach groups throughout the United States and in Essex, United Kingdom that meet periodically to offer peer support, and share resources.

FORCE:Facing Our Risk of Cancer Empowered