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FORCE Blog

This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.

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Ovarian cancer

March 30, 2017

Genetic Testing Results In An Early Stage Ovarian Cancer Diagnosis

After discovering that her mother carried the BRCA1 mutation, Ilana Feuchter of Vienna, Virginia decided to get tested as well, a decision that would ultimately lead to her diagnosis of Stage 2 ovarian cancer in November of 2013. Ilana’s journey began in the Spring of 2013 after her mother was diagnosed with a cancer of … + read more

January 19, 2017

My Experience with Ovarian Cancer: Surprise, Shock, Genetic Testing and Survival by Corinne Florin

When I got my diagnosis of stage IIIa, grade 3, clear cell ovarian cancer, it was such a shock that not a lot of information sunk in. I may or may not have discussed genetic testing but I just don’t remember.  I was aware that genetic testing existed, but during my recovery and subsequent treatment … + read more

September 27, 2016

Ovarian Cancer Awareness Month: Highlighting the Gaps and Priorities Raised by the Institute of Medicine’s Report on Ovarian Cancer Research

by Lisa Rezende and Alexandria Groves Over 20,000 women in the United States are diagnosed with ovarian cancer each year. Women with mutations in BRCA1, BRCA2, and the genes associated with Lynch syndrome are at a much greater lifetime risk of ovarian cancer compared to women in the average population. Recent studies show that women … + read more

September 6, 2016

Ovarian Cancer Survivor Survey Results: Education is Key to Informed Decision-making

FORCE’s KNOW MORE campaign helps women diagnosed with ovarian, fallopian tube, or primary peritoneal cancer make informed decisions about genetic counseling and testing for inherited mutations. To better understand their information needs, we launched a survey for women with ovarian cancer. Over 1,600 women completed our survey. This blog continues our series on survey results. How … + read more

June 2, 2016

Results from the KNOW MORE Survey: Genetic Counseling and Testing in Women with Different Types of Ovarian Cancer

KNOW MORE is a campaign designed by FORCE to help women diagnosed with ovarian, fallopian tube, or primary peritoneal cancers make informed decisions about genetic counseling and testing for inherited gene mutations. We kicked off the effort by launching a brief survey to better understand how women with ovarian and related cancers make decisions about genetic … + read more

May 27, 2016

Blog: What Do the New Guidelines from the National Comprehensive Cancer Network Mean For You?

by Lisa Rezende, PhD People with hereditary cancer face many decisions, such as whether or not to have genetic testing, choosing the best type and frequency of cancer screening, and whether or not to manage cancer risk through surgery. Health care providers look to national guidelines to give their patients advice as they make these … + read more

May 19, 2016

Updates in Research on Treating Hereditary Cancers

Note: This post which was originally published 08/4/15 was just updated on 05/19/16. In December 2014, the FDA approved the first targeted therapy for people with BRCA mutations. Lynparza, a type of medication known as a PARP inhibitor, was approved for women with a BRCA mutation to treat advanced ovarian, fallopian tube, or primary peritoneal cancer that has progressed after … + read more

April 7, 2016

Today is the 4th Annual Ovarian Cancer Day of Silence- Help Us Make an Impact!

We are participating in the Ovarian Cancer Day of Silence today and we hope that you will too. The world we live in is often over-stimulated. To break through the noise, a simple act of silence can go a long way in creating and spreading awareness. Join us in the mission to give women diagnosed with ovarian cancer a … + read more

March 17, 2016

Ovarian Cancer Survivors with a Negative Genetic Test Result in the Past May Benefit from Additional Genetic Counseling/Testing

KNOW MORE is a new campaign designed by FORCE to inform every woman diagnosed with ovarian, fallopian tube, and primary peritoneal cancer about national guidelines on genetic counseling and testing for inherited gene mutations. We kicked off the campaign by launching a brief survey to better understand how women with ovarian cancer make decisions around … + read more

February 18, 2016

What Every Woman with Ovarian Cancer Should Know: FORCE’S KNOW MORE Campaign and Survey

Increased awareness around BRCA genetic testing has helped people better understand their risk for cancer and options for lowering their risk. Less attention has focused on the importance of genetic testing for people who have already been diagnosed with cancer. This is particularly true for ovarian cancer survivors, because knowing your mutation status can change … + read more

September 27, 2015

Beyond Awareness: Working to Improve Outcomes for People Facing Hereditary Cancer

This week we mark National Hereditary Breast and Ovarian Cancer (HBOC) Week, and on Wednesday, National Previvor Day. This awareness campaign acknowledges the over one million people and families in the United States affected by hereditary cancer, due to a BRCA, PALB2, PTEN, ATM or other mutation linked to these cancers or a strong family history … + read more

September 3, 2015

Guest Blog: We All Deserve the Chance to Make Decisions About Our Futures

By Teri Woodhull Like most families in the FORCE community, cancer followed my family for generations. Breast cancer touched my mother, her mother, her mother’s mother, and my mother’s first cousin. And me. We knew it had to be more than a coincidence. My mother died at 46 of breast cancer. Her oncologist and other … + read more

August 9, 2015

Guest Blog: Attending ASCO as a Research Advocate

By Robin Karlin Thirty thousand health professionals, fabulous views of Lake Michigan and downtown Chicago, miles of escalators, fountains and crowded atriums, long lines at every Starbucks, session after session of the latest research and educational panels, and a fun evening at Shedd Aquarium. These were all part of my 2015 American Society of Clinical Oncology … + read more

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FORCE has outreach groups throughout the United States and in Essex, United Kingdom that meet periodically to offer peer support, and share resources.

FORCE:Facing Our Risk of Cancer Empowered