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FORCE Blog

This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.

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July 25, 2017

Why I Asked My Mom to Undergo Genetic Testing After Her Ovarian Cancer Diagnosis

by Lisa Rezende, PhD When my mom was first diagnosed with ovarian cancer at the age of 55 in 2001, there were many reasons why she didn’t pursue genetic testing. National guidelines didn’t automatically recommend genetic counseling and/or testing. My family history was limited. While my grandmother had breast cancer, she was diagnosed after menopause, … + read more

May 3, 2017

Genetic Testing Informs Important Medical Decisions for Three Generations in a Family

When Holly Jonas of Long Island, NY learned that her mother had been diagnosed with ovarian cancer at the age of 79, it felt like déjà vu. Her mom, who has a BRCA1 gene mutation, was already a cancer survivor, having been diagnosed with breast cancer at age 48. Believing that “knowledge is power,” Holly … + read more

March 30, 2017

Genetic Testing Results In An Early Stage Ovarian Cancer Diagnosis

After discovering that her mother carried the BRCA1 mutation, Ilana Feuchter of Vienna, Virginia decided to get tested as well, a decision that would ultimately lead to her diagnosis of Stage 2 ovarian cancer in November of 2013. Ilana’s journey began in the Spring of 2013 after her mother was diagnosed with a cancer of … + read more

January 19, 2017

My Experience with Ovarian Cancer: Surprise, Shock, Genetic Testing and Survival by Corinne Florin

When I got my diagnosis of stage IIIa, grade 3, clear cell ovarian cancer, it was such a shock that not a lot of information sunk in. I may or may not have discussed genetic testing but I just don’t remember.  I was aware that genetic testing existed, but during my recovery and subsequent treatment … + read more

January 5, 2017

FORCE Collaborates on Genetics Toolkit for Health Care Providers to Help Improve Patient Care

by Alexandria Groves In October The Society of Gynecologic Oncology (SGO) announced the release of the SGO Genetics Toolkit to provide critical and important information to health professionals, patients and their families, and anyone who wants a deeper understanding of gynecologic cancers and genetics. The Toolkit is the result of a collaboration between experts from … + read more

November 17, 2016

Results from the KNOW MORE Ovarian Cancer Survey: Your Comments

by Sue Friedman FORCE’s KNOW MORE campaign helps women diagnosed with ovarian, fallopian tube, or primary peritoneal cancers make informed decisions about genetic counseling and testing for inherited gene mutations. We launched a survey, which was completed by over 1,600 women with ovarian cancer. This blog continues our series on the survey results. We received over … + read more

September 27, 2016

Ovarian Cancer Awareness Month: Highlighting the Gaps and Priorities Raised by the Institute of Medicine’s Report on Ovarian Cancer Research

by Lisa Rezende and Alexandria Groves Over 20,000 women in the United States are diagnosed with ovarian cancer each year. Women with mutations in BRCA1, BRCA2, and the genes associated with Lynch syndrome are at a much greater lifetime risk of ovarian cancer compared to women in the average population. Recent studies show that women … + read more

September 6, 2016

Ovarian Cancer Survivor Survey Results: Education is Key to Informed Decision-making

FORCE’s KNOW MORE campaign helps women diagnosed with ovarian, fallopian tube, or primary peritoneal cancer make informed decisions about genetic counseling and testing for inherited mutations. To better understand their information needs, we launched a survey for women with ovarian cancer. Over 1,600 women completed our survey. This blog continues our series on survey results. How … + read more

June 2, 2016

Results from the KNOW MORE Survey: Genetic Counseling and Testing in Women with Different Types of Ovarian Cancer

KNOW MORE is a campaign designed by FORCE to help women diagnosed with ovarian, fallopian tube, or primary peritoneal cancers make informed decisions about genetic counseling and testing for inherited gene mutations. We kicked off the effort by launching a brief survey to better understand how women with ovarian and related cancers make decisions about genetic … + read more

April 18, 2016

Factors That Influence Decision-making for Genetic Testing in Women with Ovarian Cancer: Early Results from Our KNOW MORE Survey

KNOW MORE is a new campaign designed by FORCE to help women diagnosed with ovarian, fallopian tube, or primary peritoneal cancers make informed decisions about genetic counseling and testing for inherited gene mutations. We kicked off the campaign by launching a brief survey to better understand how women with ovarian and related cancers make decisions around … + read more

March 17, 2016

Ovarian Cancer Survivors with a Negative Genetic Test Result in the Past May Benefit from Additional Genetic Counseling/Testing

KNOW MORE is a new campaign designed by FORCE to inform every woman diagnosed with ovarian, fallopian tube, and primary peritoneal cancer about national guidelines on genetic counseling and testing for inherited gene mutations. We kicked off the campaign by launching a brief survey to better understand how women with ovarian cancer make decisions around … + read more

February 18, 2016

What Every Woman with Ovarian Cancer Should Know: FORCE’S KNOW MORE Campaign and Survey

Increased awareness around BRCA genetic testing has helped people better understand their risk for cancer and options for lowering their risk. Less attention has focused on the importance of genetic testing for people who have already been diagnosed with cancer. This is particularly true for ovarian cancer survivors, because knowing your mutation status can change … + read more

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