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FORCE Blog

This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.

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Advocacy

March 5, 2012

Why Shouldn’t We Have It All?

As a 15-year breast cancer survivor, I remind myself daily of my good fortune and blessings. Of course, I feel fortunate to be a long-term survivor, especially when I consider that my cancer initially recurred nine months after treatment. I made it through chemotherapy and radiation without any serious problems, despite needing a transfusion and … + read more

March 1, 2012

13 Important Facts About Our Hereditary Cancer Research Fund

How many times have you been asked for YOUR INPUT on which types of research should be supported? As an important stakeholder in cancer research, it is your right to help guide the direction of research. Please help us advance hereditary cancer research by: reading the 13 facts listed below about our research fund, completing our … + read more

February 22, 2012

Exclusive gene patent on BRCA: Adding burden to an already overburdened community

The United States Patent and Trademark Office (USPTO) is gathering information on the impact of gene patenting on genetic diagnostic in order to prepare a report to Congress under the America Invents Act. The USPTO is soliciting public commentary on this important issue by organizing public hearings. This past Thursday, Lisa Schlager, Vice President of Community Affairs and Public Policy … + read more

February 1, 2012

We Need Your Help Now! An urgent update on incredibly important research for women at high risk of ovarian cancer

If you were one of the high-risk women who participated in the large GOG-199 research study, thank you for helping advance critical research that will lead to better health outcomes for our community. Your continued participation in a related study, which is easy and involves only a simple annual questionnaire, will help researchers continue this … + read more

January 18, 2012

Thirteen Ways FORCE will Serve Our Community in 2012

On New Year’s Day we celebrated FORCE’s 13th birthday! Over the course of this year, we will highlight the significance of this milestone with blogs that emphasize the theme of “13.” As my first blog of the new year, I am excited to share 13 things that FORCE will do to serve the hereditary cancer … + read more

December 31, 2011

Happy New Year and Happy Birthday to FORCE

Tonight at just after midnight, FORCE and this community will celebrate our 13th birthday. It is hard to believe that it has been thirteen years since I founded FORCE, on New Years. As the new year rang in, I was sitting at my computer, fresh out of treatment and prophylactic surgery, posting on a brand-new … + read more

November 8, 2011

Guest Blogger: Reporter Stacey Sager

Reporter Stacey Sager wrote the following guest blog. Many FORCE members followed her personal and moving story in the recent video that aired on WABC-TV in New York City. What I’ve Learned from “Being BRCA” by Stacey Sager They say lightning doesn’t strike twice. Well, any of us who test positive for a BRCA1 or BRCA2 … + read more

November 2, 2011

Advocating for Men: Responding to the USPSTF Recommendations against PSA

I am concerned both on a professional and personal level about the United States Preventive Services Task Force (USPSTF) recent draft guidelines that recommend against PSA screening for men of average risk or who are high risk by virtue of a family history of cancer. FORCE has prepared a position statement in response to this … + read more

October 23, 2011

What’s New is News

We have been busy at FORCE! I’m proud of the fact that we have so many new FORCE resources to share that a special blog about “what’s new” was needed. If you missed our conference You can view free webcasts of selected sessions from our 2011 conference. The following sessions are available for on-demand viewing: Focus on BRCA … + read more

October 17, 2011

Guest Blogger: Author, Amy Boesky, PhD

The following blog was written by author and FORCE member Amy Boesky, whose inspiring, poignant, and eloquent  memoire, What we Have chronicles her family ‘s battle with hereditary cancer. Her highly-acclaimed book resonates with so many in our community. What we Need…More Research by Amy Boesky, PhD      The word research is both a noun and … + read more

October 6, 2011

HBOC Week was a Success: Let’s Sustain Awareness All Year Long

The squeaky wheel gets the grease. We have heard that saying so many times it has probably lost its true meaning. “Breast cancer awareness” and “ovarian cancer awareness” are terms that also can lose meaning over time. What does awareness mean? Does it really help in any way? Can awareness change behaviors? Can it save … + read more

August 22, 2011

FORCE is Preparing for 2011 National Hereditary Breast and Ovarian Cancer Week and National Previvor Day … and we hope you are too!

HBOC Week is our opportunity to shine the light on hereditary breast and ovarian cancer, impart knowledge, and save lives. Let’s join together to make a difference! On September 15, 2010, history was made with the unanimous passage of H Res 1522, the Congressional resolution declaring the first-ever National Hereditary Breast and Ovarian Cancer (HBOC) Week and … + read more

July 12, 2011

Prioritizing research for metastatic hereditary cancer

There is a need for more treatment options for hereditary cancer, and the need is dire for women with metastatic hereditary breast cancer who make up a small subset of the larger breast cancer population. To better understand advanced hereditary breast cancer and to advocate for more research and better treatment options, FORCE conducted a … + read more

April 25, 2011

A Prescription for Health: Taking Time for Exercise

At age 48, more than a decade after being treated for cancer and enduring chemotherapy and early menopause, I’m amazed to find myself in the best shape in my life. So many of us go to exhaustive lengths to explore and pursue options for cancer risk-management—we make multiple doctor appointments, undergo intense screening, and sometimes … + read more

October 16, 2010

Passing the Torch: Reflecting on the Past, Connecting with the Future

To members of our community, Passing of the Torch symbolizes the hereditary link between breast and ovarian cancer. For me, the event also holds a deeply personal significance: the fulfillment of a promise to a dying friend. The first Passing of the Torch arose out of my frustration with the lack of public awareness of … + read more

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