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FORCE Blog

This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.

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Archives

Archive for 2017

March 1, 2017

Making Postmastectomy Decisions: The Right Input is Critical

Note: This is part 3 of a 3-part series related to our recent XRAYS review on Roni Caryn Rabin’s New York Times piece, “‘Going Flat’ After Breast Cancer.” In part 1 of the series, FORCE volunteer, Robin Karlin discusses her decisions after mastectomy, and her feelings post-reconstruction. In part 2, Sue Friedman talks about the affect of … + read more

February 27, 2017

After Mastectomy: Go Flat or Reconstruct

Note: This is part 2 of a 3-part series related to our recent XRAYS review on Roni Caryn Rabin’s New York Times piece, “‘Going Flat’ After Breast Cancer.” FORCE volunteer, Robin Karlin discusses her decisions after mastectomy in part 1 of the series. by Sue Friedman In 1997, I was diagnosed with breast cancer at age 33. … + read more

February 23, 2017

Post-Reconstruction Thoughts on “Going Flat”

Note: This is part 1 of a 3-part series related to our recent XRAYS review on Roni Caryn Rabin’s New York Times piece “‘Going Flat’ After Breast Cancer.” by Robin Karlin Roni Caryn Rabin’s New York Times piece, “‘Going Flat’ After Breast Cancer,” brings much-needed awareness to the option of skipping reconstruction after mastectomies for breast … + read more

February 15, 2017

Guest Blog: Join FORCEs at our 2017 HBOC Conference!

by guest blogger, Jane E. Herman When I boarded the flight for my first trip to Orlando in June 2011, my goal was not to hug Mickey Mouse or visit Cinderella’s Castle. Rather, my destination was the sixth annual Joining FORCEs Conference. Not knowing anyone who would be in attendance, I was – not unexpectedly … + read more

January 31, 2017

MEDIOLA: A Clinical Trial Combining a PARP Inhibitor with an Immunotherapy Drug

By Ding Wang, MD and Catherine Jenovai Immune system and cancer Every day our bodies are exposed to various injuries that may damage our cells. The damaged cells with certain types of genetic defects are tagged as abnormal and removed by our immune system. If something goes wrong and the cells are not removed by … + read more

January 26, 2017

Flawed Research and Reporting on the “Angelina Effect” Could Threaten Access to HBOC Care

by Lisa Schlager, Lisa Rezende, PhD and Sue Friedman “Angeline Effect” Angelina Jolie’s May 2013 New York Times editorial “My Medical Choice,” which detailed her decision to have a double mastectomy because she carries a BRCA1 mutation brought unprecedented attention to hereditary cancer and BRCA genetic testing. This “Angelina Effect” created an avalanche of public … + read more

January 19, 2017

My Experience with Ovarian Cancer: Surprise, Shock, Genetic Testing and Survival by Corinne Florin

When I got my diagnosis of stage IIIa, grade 3, clear cell ovarian cancer, it was such a shock that not a lot of information sunk in. I may or may not have discussed genetic testing but I just don’t remember.  I was aware that genetic testing existed, but during my recovery and subsequent treatment … + read more

January 12, 2017

Update on Hormone Therapy for Previvors

by Alexandria Groves and Lisa Rezende, PhD National guidelines recommend that women with mutations in BRCA have risk-reducing removal of their ovaries and tubes, (also known as salpingo-oophorectomy or RRSO) either between the ages of 35-40 or after they are done having children. RRSO greatly reduces the risk of ovarian, fallopian tube, and peritoneal cancer, … + read more

January 12, 2017

FORCE XRAYS Program Empowers Young Breast Cancer Survivors

Unconfuse the News with the FORCE XRAYS Program When Kimberly Jackson received a breast cancer diagnosis at the age of 32 while breastfeeding her 6-month old daughter and caring for her 3-½ year old daughter, she fell into shock. In an attempt to understand more about her diagnosis and potential treatments, she began to sort … + read more

January 5, 2017

FORCE Collaborates on Genetics Toolkit for Health Care Providers to Help Improve Patient Care

by Alexandria Groves In October The Society of Gynecologic Oncology (SGO) announced the release of the SGO Genetics Toolkit to provide critical and important information to health professionals, patients and their families, and anyone who wants a deeper understanding of gynecologic cancers and genetics. The Toolkit is the result of a collaboration between experts from … + read more

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