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FORCE Blog

This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.

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Ovarian Cancer Awareness Month: Highlighting the Gaps and Priorities Raised by the Institute of Medicine’s Report on Ovarian Cancer Research

September 27, 2016

by Lisa Rezende and Alexandria Groves Over 20,000 women in the United States are diagnosed with ovarian cancer each year. Women with mutations in BRCA1, BRCA2, and the genes associated with Lynch syndrome are at a much greater lifetime risk of ovarian cancer compared to women in the average population. Recent studies show that women … + read more

How the XRAYS Program Can Help You Understand Ovarian Cancer

September 19, 2016

Over 20,000 women each year are diagnosed with ovarian cancer, affecting both those diagnosed and their loved ones. An integral aspect of our mission for the XRAYS (eXamining Relevance of Articles for Young Survivors) program is to inform our readers, specifically young survivors, with timely and accurate information to help them make sense of the … + read more

Ovarian Cancer Survivor Survey Results: Education is Key to Informed Decision-making

September 6, 2016

FORCE’s KNOW MORE campaign helps women diagnosed with ovarian, fallopian tube, or primary peritoneal cancer make informed decisions about genetic counseling and testing for inherited mutations. To better understand their information needs, we launched a survey for women with ovarian cancer. Over 1,600 women completed our survey. This blog continues our series on survey results. How … + read more

XRAYS: One Year of Making Sense of Cancer Headlines!

August 19, 2016

Over the past year, XRAYS has become a reliable resource for improving our readers’ understanding of breast cancer related news. Since launching on August 25, 2015, XRAYS has made sense of what can often be confusing cancer headlines; empowering cancer survivors, people at high risk for breast cancer, and their families to make better decisions … + read more

Metastatic Hereditary Breast Cancer Treatment Research: BROCADE 3 Study

July 28, 2016

By Heather Han, MD and Sue Friedman Metastatic Hereditary Breast Cancer Research There are major gaps in research, resources, and support for people with metastatic breast cancer – cancer that has spread beyond the breast and lymph nodes. A promising area of research is focusing on new treatments for hereditary metastatic breast cancer caused by … + read more

Our Top 3 XRAYS Reviews: Why You Should Read Them

July 25, 2016

FORCE’s XRAYS program, funded by the Centers for Disease Control (CDC), serves as a reliable source of information for young breast cancer survivors and high-risk women, helping them navigate the complex world of breast cancer research-related news and information. We review the latest research and media articles for accuracy and relevancy in order to improve … + read more

Cancer Screening Guideline Loopholes and Confusion Jeopardize Coverage of Services: Part II of Access to Care Series

July 5, 2016

by Lisa Schlager Over 2 million women in the U.S. are at high risk for breast cancer due to family history. Additionally, nearly a million Americans carry an inherited BRCA mutation and a number of other genetic mutations have also been linked to increased risk of breast, ovarian and other cancers. Several organizations develop cancer … + read more

Guest Blog: Join FORCEs at our 2016 HBOC Conference!

June 23, 2016

by guest blogger, Jane E. Herman Note: This post which was originally published 02/05/15 was just updated on 06/23/16. When I boarded the flight for my first trip to Orlando in June 2011, my goal was not to hug Mickey Mouse or visit Cinderella’s Castle. Rather, my destination was the sixth annual Joining FORCEs Conference. … + read more

National Task Force Guideline Gaps Hinder Access to Genetic Testing

June 17, 2016

by Lisa Schlager Nearly a million Americans carry an inherited BRCA mutation associated with hereditary breast, ovarian cancer, and related cancers (HBOC) and it is estimated that 2.3 million women in the U.S. are at high risk for breast cancer due to family history. A number of other genetic mutations have also been linked to … + read more

Results from the KNOW MORE Survey: Genetic Counseling and Testing in Women with Different Types of Ovarian Cancer

June 2, 2016

KNOW MORE is a campaign designed by FORCE to help women diagnosed with ovarian, fallopian tube, or primary peritoneal cancers make informed decisions about genetic counseling and testing for inherited gene mutations. We kicked off the effort by launching a brief survey to better understand how women with ovarian and related cancers make decisions about genetic … + read more

Blog: What Do the New Guidelines from the National Comprehensive Cancer Network Mean For You?

May 27, 2016

by Lisa Rezende, PhD People with hereditary cancer face many decisions, such as whether or not to have genetic testing, choosing the best type and frequency of cancer screening, and whether or not to manage cancer risk through surgery. Health care providers look to national guidelines to give their patients advice as they make these … + read more

Updates in Research on Treating Hereditary Cancers

May 19, 2016

Note: This post which was originally published 08/4/15 was just updated on 05/19/16. In December 2014, the FDA approved the first targeted therapy for people with BRCA mutations. Lynparza, a type of medication known as a PARP inhibitor, was approved for women with a BRCA mutation to treat advanced ovarian, fallopian tube, or primary peritoneal cancer that has progressed after … + read more

Experience with Oncology Clinical Trial Participation and Impact on Future Trial Design and Conduct

May 10, 2016

Note: Last year, TESARO, a pharmaceutical company developing a new PARP inhibitor for treatment of ovarian cancer and metastatic breast cancer, asked FORCE to help recruit previous clinical trial participants to join focus groups across the U.S. TESARO wanted to understand the patient experience to build clinical trials that are more responsive to patient needs. We … + read more

5 Stories We Love of Strong Women & Mothers: Happy Mother’s Day

May 7, 2016

Mother’s Day 2016 kicks off National Women’s Health Week, which goes from May 8th through May 14th. This is an excellent time to celebrate all of the women who have made a difference in our lives. Although beautiful, Mother’s Day can be an emotional (and sometimes messy) day. Many of us have mothers, grandmothers and … + read more

Receive Personalized Resources and Support Quickly and Easily Through FORCE’s New Peer Navigation Program

April 25, 2016

by Wendy Demming, FORCE Peer Navigator Volunteer I wanted to be a Peer Navigator because it is important for me to help others who are going through an overwhelming diagnosis. I remember being desperate for credible information, and wanting to talk to others who had been in a similar situation. I was so grateful when … + read more

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FORCE has outreach groups throughout the United States and in Essex, United Kingdom that meet periodically to offer peer support, and share resources.

FORCE:Facing Our Risk of Cancer Empowered