Advocacy

FORCE advocates for families facing hereditary breast and ovarian cancer in areas such as access to care, research funding, insurance, and privacy.

Advocacy > Advocacy Resources

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Newsflash

1/31/2019
FORCE spearheaded a stakeholder letter to HHS and CMS expressing concern about interpretation of a national policy which places significant limits on hereditary cancer genetic testing in the Medicare population.

1/17/2019
FORCE joined 50 other orgs in an advertising campaign to stop the proposed changes to Medicare Part D’s Six Protected Classes.

1/16/2019
We submitted comments on the Healthy People 2030 initiative asking that genomics goals are incorporated into the plan.

12/31/2018
As a Friends of the Cancer Policy Institute member, FORCE provided comments on the International Pricing Index (IPI) Model for Medicare Part B Drugs.

12/20/2018
Success! The EEOC removed the GINA regulations section allowing incentives/penalties to provide personal health information as part of an employer-sponsored wellness program.

 

Advocacy Resources

American Society of Clinical Oncology (ASCO) ACT Network
The ASCO ACT Network is dedicated to shaping the future of oncology by influencing Congress and other policy makers on important legislation.

Cancer Action Network (CAN)
A nonprofit, nonpartisan advocacy affiliate of the American Cancer Society (ACS). ACS CAN works to make cancer issues a national priority.

Cancer Advocacy Now
A grass-roots program created by the National Coalition for Cancer Survivorship that helps cancer patients become effective advocates on issues that affect them.

Cancer Legal Resource Center (CLRC)
A joint program of the Disability Rights Legal Center and Loyola Law School. CLRC resources include a telephone assistance line, educational seminars, teleconferences and webinars, and public policy updates.

Coalition for Genetic Fairness (CGF)
This coalition of nonprofit and for-profit groups advocates for passage of federal genetic laws prohibiting genetic discrimination.

Department of Defense (DOD) Congressionally Directed Medical Research Programs
The Department of Defense is the second largest funding agency for breast and ovarian cancer research. This page discusses consumer participation in the DOD's research programs.

Friends of Cancer Research
Friends of Cancer Research is a nonprofit organization that aims to accelerate progress toward better tools for the prevention, detection and treatment of cancers.

Genetic Alliance
A coalition of genetic advocacy organizations, the Genetic Alliance provides resources and tools for families affected by hereditary diseases.

National Patient Advocate Foundation
National Patient Advocate Foundation is a nonprofit organization providing the patient voice in improving access to, and reimbursement for, high-quality healthcare through regulatory and legislative reform at the state and federal levels.

Ovarian Cancer Research Fund Alliance (OCRFA)
An organization devoted to the ovarian cancer community by advancing research and promoting advocacy while supporting women and families.

Patient Centered Outcomes Research Institute (PCORI)
Helps people make informed healthcare decisions, and improves healthcare delivery and outcomes, by producing and promoting high integrity, evidence-based information that comes from research guided by patients, caregivers and the broader healthcare community.

Research Advocacy Network
A nonprofit organization dedicated to developing a network of consumer advocates to improve patient care.

Susan G. Komen
Komen works to ensure that the fight against breast cancer is a priority among policymakers in Washington, DC, and every Capitol across the country.

FORCE:Facing Our Risk of Cancer Empowered