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FORCE advocates for families facing hereditary breast and ovarian cancer in areas such as access to care, research funding, insurance, and privacy.

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Newsflash

11/8/17
FORCE, along with 60 other patient groups, is asking the Senate to preserve medical expense deductions in any forthcoming tax reform legislation.  

10/25/17
We joined over 100 Defense Health Research Consortium orgs in supporting DoD research funding. Learn more...

9/22/17
Check out this new video w/FORCE & 15 other cancer orgs representing patients, physicians, nurses, & social workers. Oppose Graham-Cassidy! See Video...

9/14/17
FORCE reps were in St. Louis today for an ICER hearing on the value and cost of PARP inhibitors for ovarian cancer patients.

Current Issues

Insurance Coverage & Barriers

Executive Actions Pose New Challenges for U.S. Health Care

Frustrated by the lack of progress on health care reform, on October 12, President Trump issued an executive order which could undermine the individual and small group health insurance markets. The order allows “junk” association and short-term health plans. The same day, the White House announced that it is planning to halt cost-sharing reduction payments (CSRs) which help health insurance companies offset out-of-pocket medical costs for low-income enrollees, keeping coverage affordable. In essence, without changing or repealing the Affordable Care Act (ACA), these actions authorize federal agencies to modify regulations so that more health plans would be exempt from some of its core requirements. 

Insurance Coverage & Barriers

FORCE Supports Oral Chemotherapy Parity Initiatives

Oral chemotherapy is becoming more common and is the standard of care for many types of cancer. Oral treatment also accounts for about a third of the oncology development pipeline. Importantly, many oral anti-cancer medications do not have IV or injected alternatives, and are the only option for some patients. PARP inhibitors, which hold great promise for treating BRCA-related cancers, are just one example. For this reason, these medications must be as affordable as their IV counterparts. FORCE is supporting the Cancer Drug Coverage Parity Act of 2017, a national legislative initiative which strives to create equal insurance coverage of patient administered and physician administered cancer treatments.

Insurance Coverage & Barriers

Senate Drops ACA Repeal Effort

A bill introduced in the Senate—referred to as the Graham-Cassidy plan—briefly gained momentum but was dropped when it couldn't garner enough support for passage. Facing a deadline of September 30th to pass legislation with a simple majority vote, the controversial bill drew criticism from patient advocacy groups, medical societies, and others. The revised ACA repeal plan would have given states broad waiver authority to eliminate the ACA’s core protections for people with preexisting health conditions. These waivers would have come on top of the proposal’s elimination of the ACA’s marketplace subsidies and Medicaid expansion, radical restructuring of the rest of the Medicaid program, and large cuts to total federal funding for health insurance coverage.

Treatments & Therapies

ICER Review of PARP Inhibitors for Ovarian Cancer

In July 2017, the Institute for Clinical and Economic Review (ICER) released a draft evidence report titled, “Poly ADP-ribose polymerase (PARP) Inhibitors for Ovarian Cancer: Effectiveness and Value.” FORCE has concerns about the report's conclusions as there are significant differences in the patient populations used for comparative data and gaps in the costs used for the value analysis. Additionally, the analysis design does not adequately represent the interests of patients, clinicians, or the hereditary cancer community. FORCE expressed these concerns via written comments and testified at the Midwest CEPAC meeting on September 14, 2017.

Insurance Coverage & Barriers

Statement Sets the Record Straight on AHCA and HR 1313

Recent events related to proposed changes in health care and genetic privacy laws have spurred concern and uncertainty in the hereditary cancer community. Some media stories have disseminated inaccurate information, which has intensified people’s unease. We prepared this briefing to dispel some of the misinformation and allay some of the fears that have been expressed. This statement aims to answer questions and clarify information regarding HR 1313, employer-based wellness programs, and GINA.  It also explains where things stand with repeal and replacement of the ACA, and clarifies what may be considered a pre-existing condition. 

Insurance Coverage & Barriers

Hereditary Cancer Health Care Report

May 4, 2017
Today, the U.S. House of Representatives passed a bill that would repeal much of the Affordable Care Act (ACA) and replace it with a new health care system.The new legislation allows states to seek a waiver from ACA's current requirement that insurers charge people the same for coverage regardless of whether they have a pre-existing condition. It also eliminates mandatory coverage of essential health benefits such as maternity care, mental health, and preventive screenings. It's important to understand that this is only the first in a number of steps required to change the current U.S. health system. 

Screening & Prevention

FORCE Weighs In on Prostate Cancer Screening Guidelines

FORCE recently submitted comments on the USPSTF Draft Recommendation Statement and Evidence Review for Prostate Cancer Screening. Once finalized, these guidelines are utilized by health care providers to determine appropriate screening and care, and to inform insurance coverage decisions on specific preventive services. The Affordable Care Act stipulates that any preventive service receiving a USPSTF rating of “A” or “B” must be covered by most health plans with no copay or cost-sharing for the patient. Consequently, these guidelines impact access to care for members of the hereditary cancer community.

Genetic Privacy & Protection

New Legislation Threatens Genetic Privacy

H.R. 1313, the Preserving Employee Wellness Programs Act, garnered a great deal of attention in recent weeks. On March 22nd, we received word that the bill is "on hold" and will not move forward without revisions—including changes to the genetic information requirements. Unfortunately, members of the House Committee on Education and the Workforce indicated that they will push forward with modified legislation. We are working to ensure that any revisions to the proposed legislation reflect the concerns of those affected by hereditary cancer. Updates on this important issue will be provided when they are available. 

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