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FORCE advocates for families facing hereditary breast and ovarian cancer in areas such as access to care, research funding, insurance, and privacy.

Advocacy > Issues > Precision Medicine Initiative

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Newsflash

4/17/18
FORCE and over 100 patient and professional health orgs reached out to Congressional leaders to oppose expansion of short-term health insurance plans. Read letter...

4/12/18
FDA finalizes guidances to accelerate development of reliable, beneficial next generation sequencing-based tests. Read press release...

4/9/2018
FORCE joined other organizations in urging Utah to clarify and protect coverage of breast reconstruction after cancer for its Medicaid recipients. Read more...

2/27/2018
FORCE, along with over 100 other organizations, is advocating for continued funding of DoD research programs. Read our letter to Congressional leaders.

2/7/2018
FORCE staff and advocates joined stakeholders for a "BRCA Community Perspectives on Data Sharing" workshop in Santa Cruz, CA.

2/6/2018
We joined nearly 40 patient and health care professional organizations in expressing opposition to proposed national right-to-try legislation. Read the letter...

 

Precision Medicine Initiative

Screening & Prevention

Overview

On January 20, 2015, President Obama announced the Precision Medicine Initiative® (PMI) in his State of the Union address. Through advances in research, technology and policies that empower patients, the PMI will pave the way for a new era of medicine in which researchers, health care providers and patients collaborate to achieve individualized care.

The President called for $215 million in fiscal year 2016 to support the Initiative, which includes several components with efforts from across the federal government. Of this total proposed budget, $130 million was allocated to the National Institues of Health to build a national, large-scale research participant group, called a cohort, and $70 million was allocated to the National Cancer Institute to lead efforts in cancer genomics as part of PMI for Oncology.

The biggest conceptual leap reflected by the new initiative is an effort to disrupt the old paradigm of conducting scores of studies designed to yield narrow results--instead, creating an extensive research cohort that will collect health information from at least a million volunteers by 2019, from different sources including electronic medical records, genetic analyses and smartphones or wearable sensors.

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