FORCE advocates for families facing hereditary breast and ovarian cancer in areas such as access to care, research funding, insurance, and privacy.
On January 20, 2015, President Obama announced the Precision Medicine Initiative® (PMI) in his State of the Union address. Through advances in research, technology and policies that empower patients, the PMI will pave the way for a new era of medicine in which researchers, health care providers and patients collaborate to achieve individualized care.
The President called for $215 million in fiscal year 2016 to support the Initiative, which includes several components with efforts from across the federal government. Of this total proposed budget, $130 million was allocated to the National Institues of Health to build a national, large-scale research participant group, called a cohort, and $70 million was allocated to the National Cancer Institute to lead efforts in cancer genomics as part of PMI for Oncology.
The biggest conceptual leap reflected by the new initiative is an effort to disrupt the old paradigm of conducting scores of studies designed to yield narrow results--instead, creating an extensive research cohort that will collect health information from at least a million volunteers by 2019, from different sources including electronic medical records, genetic analyses and smartphones or wearable sensors.