Advocacy

FORCE advocates for families facing hereditary breast and ovarian cancer in areas such as access to care, research funding, insurance, and privacy.

Advocacy > Advocacy Issues

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Newsflash

2/7/2018
FORCE staff and advocates joined stakeholders for a "BRCA Community Perspectives on Data Sharing" workshop in Santa Cruz, CA.

2/6/2018
We joined nearly 40 patient and health care professional organizations in expressing opposition to proposed national right-to-try legislation. Read the letter...

1/17/2018
FORCE submitted comments on a draft CMS Policy on NGS for Medicare Beneficiaries with Advanced Cancer.

1/3/2018
PALS Act moratorium extended to January 2019, preserving insurance coverage of mammograms for women ages 40-49. Read more...

12/20/2018
Court vacates EEOC wellness program rules effective January 1, 2019 signaling end to coercive practices.

Hereditary Cancer Awareness

FORCE has strived to raise awareness about hereditary breast and ovarian cancers (HBOC) since its inception in 1999. Over the years, this has included local, state and federal initiatives aimed at increasing public knowledge about the hereditary aspects of certain cancers, recognizing people affected by these cancers, and representing the HBOC community in the broader cancer community.

Insurance Coverage & Barriers

Statement Sets the Record Straight on AHCA and HR 1313

May 2017 - Recent events related to proposed changes in health care and genetic privacy laws have spurred concern and uncertainty in the hereditary cancer community. Some media stories have disseminated inaccurate information, which has intensified people‚Äôs unease. We prepared this briefing to dispel some of the misinformation and allay some of the fears that have been expressed. This statement aims to answer questions and clarify information regarding HR 1313, employer-based wellness programs, and GINA.  It also explains where things stand with repeal and replacement of the ACA, and clarifies what may be considered a pre-existing condition. 

Hereditary Cancer Awareness

EARLY Act Raises Brings Young Breast Cancer to Forefront

The Breast Cancer Education and Awareness Requires Learning Young (EARLY) Act authorizes a nationwide breast cancer awareness and support campaign for women age 45 and under, including high-risk women, breast cancer survivors, and their doctors. The law also includes broad-reaching public and healthcare professional education campaigns, prevention research, and additional support for young women diagnosed with breast cancer. 

Hereditary Cancer Awareness

Establishment of National HBOC Week and Previvor Day

FORCE made history in 2010 with the successful passage of a Congressional resolution declaring the first-ever National Hereditary Breast and Ovarian Cancer (HBOC) Week and National Previvor Day. FORCE spearheaded this effort to raise awareness and highlight the impact of these hereditary cancers. 

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