Advocacy

FORCE advocates for families facing hereditary breast and ovarian cancer in areas such as access to care, research funding, insurance, and privacy.

Advocacy > Advocacy Accomplishments

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Newsflash

7/25/2018
This week, the House of Representative passed the Palliative Care and Hospice Education and Training Act to improve health professional training in palliative care. Read Bill...

7/15/2018
We joined the Friends of the Cancer Policy Institute coalition in submitting comments on the HHS Blueprint to Lower Drug Prices and Reduce Out-of-Pocket Costs.

6/20/2018
FORCE, along with over two dozen orgs, issued a statement on the final rule permitting expansion of association health plans. Read Statement...

6/1/2018
FORCE staff are attending the American Society of Clinical Oncology (ASCO) annual meeting in Chicago.

5/9/18
We joined 80 patient advocacy, medical, and industry orgs in urging Congress to enact legislation to modernize FDA oversight of clinical laboratory diagnostics. Read letter...

Passage of the Genetic Information Nondiscrimination Act (GINA)

Insurance Coverage & Barriers

Overview

The Genetic Information Nondiscrimination Act (GINA) is designed to prohibit the use of genetic information in health insurance and employment. It prohibits group health plans and insurers from denying coverage to a healthy individual or charging that person higher premiums based solely on a genetic predisposition to developing a disease in the future. The legislation also bars employers from using individuals’ genetic information when making hiring, firing, job placement, or promotion decisions.  Initially, the Coalition consisted of civil rights, disease-specific, and healthcare organizations, but in 2005 the CGF expanded to include industry groups and employers, uniting more than 500 organizations and thousands of individuals as one voice against genetic discrimination.  The law currently does not protect individuals from discrimination in life, disability or long-term care insurance. For more information, visit NIH’s National Human Genome Research Institute.

See our Privacy & Legal Issues section for more extensive info on GINA.  

FORCE:Facing Our Risk of Cancer Empowered