About UsNewsShop
Fighting hereditary breast and ovarian cancer
Our Community
| More

Jools (AKA Alice What's The Matter), Bedford, UK



Age: 39

Diagnosed w/ stage II breast cancer April 2012, Lumpectomy May 2012, chemo June-Nov 2012, BRCA2 diagnosis Dec 2012, PBM February 2013. Future BSO?

I'm more than my risk… some fun facts about myself:

Favorite book / authors:
Sheri S Tepper, Dean Koontz, Trudi Canavan...

Favorite TV / Movies:
Notting Hill

Favorite Quote:
“When we are no longer able to change a situation, we are challenged to change ourselves. ...The last of one’s freedoms is to choose one’s attitude in any given circumstance.” ~ Viktor E. Frankl ~

Favorite Song:
Dancing Queen - Abba

Favorite Superhero:
Wonder Woman


Add your Voice

If you'd like to add your own story to our Voices of FORCE pages, please complete our Voices of FORCE form.

My journey

Diagnosed w/ stage II breast cancer April 2012.

Had a lumpectomy May 2012, a lovely neat job - shame I couldn't keep it...

Got through 8 cycles of FEC-T chemo from June-Nov 2012. It was hard going but I had the support of my family and friends, which made all the difference. I also had my blog, http://www.alicewhatsthematter.com to talk about some of the things I experienced.

Rather than start Radiotherapy I asked my oncologist to refer me to a private genetic counsellor and got a blood test done. It was at that point I got the confirmation I expected in Dec 2012 - hereditary risk of cancer due to a positive BRCA2 diagnosis.

With that knowledge that I am BRCA2 it made sense to have a Prophylactic Bilateral Mastectomy February 2013, and I had reconstruction at the same time, with Becker expanders (they are permanent).

Knowledge of the risks of ovarian cancer means I've been advised to have a Bilateral Oophrectomy - I need to go back and find out whether it will be a Bilateral Salpingo-Oophrectomy or hysterectomy (assume not) or whatever.

The hardest part of my journey

I never had children. We tried, and I lost one via an ectopic pregnancy because of my endometriosis. It put a lot of emotional strain on my marriage and I was apart from my husband whilst I went through my horrible year last year.

If I could do it over again

No. I don't look back, only forward.

My participation with FORCE

I think it's helping me to understand the potential side-effects of a surgical menopause.

Other thoughts

Thanks to everyone who I've already interacted with - everyone's very supportive.


Disclaimer: Health links are made available for educational purposes only. This information should not be interpreted as medical advice. All health information should be discussed with your health care provider. Please read our full disclaimer for more information.

Privacy Policy | Sitemap | Contact Us


This site has been made possible by a generous grant from Morphotek.

Web design by Rareheron Web Design

copyright © FORCE: Facing Our Risk of Cancer Empowered, Inc.  •  info@facingourrisk.org